Baby Indi Gregory who was at the centre of a legal argument over her treatment has died after having her breathing tube removed.
Eight month old Indi, who was suffering from an incurable genetic mitochondrial condition, had been involved in several High Court and Court of Appeal cases.
Judges ruled she should die but last week Italy stepped in and made her an Italian citizen launching a last minute legal bid to bring her to a Rome hospital for treatment.
But on Friday that attempt failed, and her parents Dean Gregory and Claire Stanforth were told that her breathing tube would be removed.
She was moved from the Queen Medical Centre in Nottingham to a hospice where she died in the early hours of Monday morning.
Baby Indi Gregory who was at the centre of a legal argument over her treatment has died after having her breathing tube removed
Indi pictured at her christening alongside her parents Claire Staniforth and Dean Gregory
In a statement to Italian media Dean said: ‘Indi’s life ended at 01.45am. My wife Clare and I are angry, heartbroken and ashamed.
‘The NHS and the courts have not only taken away her chance to live, they have also taken away her dignity to die in her home.
‘They managed to take Indi’s body and dignity, but they will never be able to take her soul.
‘I knew she was special from the day she was born, they tried to get rid of her without anyone knowing but Clare and I made sure she would be remembered forever.’
On Saturday Pope Francis released a statement backing the family.
He said: ‘Pope Francis embraces the family of little Indi Gregory, her father and mother, prays for them and for her, and turns his thoughts to all the children around the world in these same hours who are living in pain or risking their lives because of disease and war.’
